Improve Care Now - Using Patient Data to Transform Care and Improve Outcomes for Children with Inflammatory Bowel Disease (IRB# 42273)
- Principal Investigator: Marc E. Schaefer, MD, MPH
The purpose of this project is to design, develop, and test further refinements to an improvement and research network focused on Inflammatory Bowel Disease (IBD), to use a registry to simultaneously improve clinical care, re-design care delivery systems and to conduct quality improvement, health services, outcomes, and comparative effectiveness research.
Inclusion: IBD diagnosis and a current patient at the HMC pediatric gastroenterology.
Additional Study Details:
Information from participant's medical record on his/her disease will be collected and entered into the password protected database.
Information that will be collected and recorded in the database includes: demographics (ex: gender, date of birth, race), disease history (ex: diagnosis, family history, disease severity and location), physical exam (ex: weight, height, BMI), and treatment and testing of disease (ex: biopsy reports, medications, bone density, surgeries or complications etc.)
Information will be collected and entered into the data base until participants are no longer a patient at the Penn State Hershey Pediatric Gastroenterology Clinic.
Penn State Milton S. Hershey Medical Center
Pediatric Clinical Research Office