Rheumatology

Social Media - Impact of Social Media and Online Support for Self-Management in Adolescents with SLE (IRB# 38689)

Status: Active

 

Investigators:

  • Principal Investigator: Lisa Scalzi, MD, MS

 

Description:

Children and adolescents with chronic conditions are faced with many challenges, one of which is self-management of their disease. Mastering self-management is a key process to successfully transitioning to independent, adult care and to prevent worsening of disease severity.  A key component of self-management skills includes medication adherence. Systemic lupus erythematosus (SLE) is a prototypic chronic disease which often presents in adolescence and continues into adulthood.

We propose a pilot project consisting of an 8-week, online support and educational program utilizing social support via Facebook.

 

Eligibility:

We will be recruiting 20 subjects who will receive intervention and 15 control subjects, all with SLE between the ages of 13 and 21 years of age.

 

Additional Study Details:

Primary measures of interest are those of medication adherence. Secondary measures of improvement include measures of SLE disease knowledge, self-efficacy, quality of life and perceived stress. Subjects enrolled in the active intervention will have weekly assignments and participate in online discussions with the health team and the other active participants on Facebook.

 

Locations:

Penn State Milton S. Hershey Medical Center
 

 

Contacts:

Pediatric Clinical Research Office

717-531-5656

 

Categories:

  • Rheumatology