Patient Resources

Hemophilia Patient Education Resources/Patient/Family Resources

Web Resources

  • The Hemophilia and Thrombosis Center of central Pennsylvania

  • The National Hemophilia Foundation is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research.
  • The Centers for Disease Control (CDC) is an agency of the United States government dedicated to saving lives, protecting people and saving money through prevention.
  • American Thrombosis & Hemostasis Network (athn) is a nonprofit organization committed to advancing and improving care for individuals affected by bleeding and thrombotic disorders.
  • ATHNAdvoy makes it easier for patients with chronic diseases, such as hemophilia, and caregivers to share important therapy data and access other valuable information about treatment resources.
  • Changing Possibilities in Hemophilia Coalition was created by patients and caregivers to help educate others about hemophilia with inhibitors. The site is sponsored by Novo Nordisk.

Thrombophilia/Thrombosis Patient Education Resources

Web Resources

Please click on the following links for more information on different types of Thrombophilia: 

General information

  • National Blood Clot Alliance -  Blood clot education for patients and professionals
  • What is Deep Vein Thrombosis?  - information from the National Heart Lung and Blood Institute
  • Deep-Vein Thrombosis - Advancing Awareness to Protect Patient Lives - an informational white paper published by the American Public Health Association