Hemophilia Patient Education Resources/Patient/Family Resources

Web Resources

• The Hemophilia & Thrombosis Center of Central Pennsylvania

http://www.pennstatehershey.org/hematology

• The National Hemophilia Foundation is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research. http://www.hemophilia.org
• The Centers for Disease Control (CDC) is an agency of the United States government dedicated to saving lives, protecting people and saving money through prevention. http://www.cdc.gov/ncbddd/hemophilia/index.html
• American Thrombosis & Hemostasis Network (athn) is a nonprofit organization committed to advancing and improving care for individuals affected by bleeding and thrombotic disorders. http://www.athn.org/
• ATHNAdvoy makes it easier for patients with chronic diseases, such as hemophilia, and caregivers to share important therapy data and access other valuable information about treatment resources.
• Changing Possibilities in Hemophilia Coalition was created by patients and caregivers to help educate others about hemophilia with inhibitors. The site is sponsored by Novo Nordisk. http://www.changingpossibilities-us.com/UnRegAdults.aspx

Thrombophilia/Thrombosis Patient Education Resources

Web Resources

Please click on the following links for more information on different types of Thrombophilia: 

• Factor V Leiden - Please click on any of the following links for additional information on Factor V Lieden:
  • Genetics Home Reference website
  • National Human Genome Research Institute
  • Thrombophilia Awareness Project
• Prothrombin G 20210A mutation
• Protein C deficiency
• Protein S deficiency
• Antithrombin deficiency
• Antiphospholipid Syndrome (APS)  Please click on the following link for additional information on APS:
  • APS Foundation of America, Inc.

Please click on the following links for more general information: 

• National Blood Clot Alliance -  Blood clot education for patients and professionals
• What is Deep Vein Thrombosis?  - information from the National Heart Lung and Blood Institute
• Deep-Vein Thrombosis - Advancing Awareness to Protect Patient Lives - an informational white paper published by the American Public Health Association