IBD Registry

The Colon and Rectal Surgery Division's research laboratory group is actively investigating inflammatory bowel disease (IBD), a chronic inflammatory condition that affects the intestines. IBD can result in abdominal pain, diarrhea, anemia, and malnutrition. The two main types of IBD are ulcerative colitis and Crohn's disease. There is currently no cure for IBD and its cause remains unknown. IBD often affects several members of the same family, suggesting it may have a hereditary component. A core effort of our research is to enroll patients for the purpose of investigating the genetic basis for IBD.

We seek IBD patients and their family members for enrollment in our registry to increase the understanding of IBD and what factors influence the course of IBD over time. Discovery of the causes of IBD will allow our scientists to find better ways to treat and perhaps one day prevent IBD. No personal identifying information will be associated with your sample. We are fully compliant with the federal Health Insurance Portability and Accountability Act (HIPAA) regulations.

A quality-of-life questionnaire along with medical record information will be placed into the research registry for each participant. We will ask you to provide us a blood sample so that we can try to identify genetic factors that play a role in IBD.

There is no promise of personal benefit if you choose to participate in the study. The results of this study will provide information about the genetic factors that contribute to the development of IBD. As a result, this information may lead to better ways to diagnose and treat IBD.

If you have inflammatory bowel disease and would like to participate in the familial inflammatory bowel disease registry at Penn State Milton S. Hershey Medical Center, please contact: HersheyIBD@hmc.psu.edu.

  • Philadelphia Health Care Trust
  • The Carlino fund for IBD research at the Milton S. Hershey Medical Center